Rare diseases: How far we’ve come.

This year marks the 10th anniversary of Rare Disease Day. And with the theme locked in as “research,” we thought we’d honor the day by looking back at how far clinical trials have come. Over the last few decades, clinical research has made remarkable strides in increasing funding and awareness of serious, rare conditions like bone cancer, multiple myeloma, and familial Alzheimer’s, just to name a few out of the 7,000 known rare diseases.

Even with all of this progress, rare disease research still has a long way to go when you consider only 5% of rare diseases have a treatment option currently available. With small patient populations, researchers encounter many challenges when trying to recruit patients and generate reliable results. Looking forward, it’s important to keep spreading awareness through initiatives like Rare Disease Day so that we can continue to improve the lives of patients affected by these little-known but serious conditions.

Want to share your experience with a rare disease clinical trial? We’d love to hear it. Get in touch.

 

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